I thought this would be a good topic to write about because when I was first suffering with symptoms of Guillain-Barre Syndrome I did what most other desperate people in pain do, I googled it. Lots of conditions came up like sciatica, trapped nerve, anxiety, repetitive strain injury, but not Guillain-Barre Syndrome. The very first … Continue reading Guillain-Barre Syndrome – The warning signs.
When I was initially diagnosed with Guillain-Barre Syndrome I was in excruciating pain and being given doses of Morphine throughout the day and night in an attempt to make the pain bearable. I also couldn't walk on my own and had lost normal use of my arms and facial muscles. Although I was extremely happy … Continue reading My go to products for life after Guillain-Barre Syndrome.
Since my Guillain-Barre Syndrome diagnosis, one of the the things I've noticed is that people often don't consider me to be 'sick' or disabled if visually there is nothing wrong with me. Huge assumptions are made based on how I look. I don't have a wheelchair or walking aid so it's assumed I don't have … Continue reading Spoon Theory explained.
When I was diagnosed with Guillain-Barre Syndrome back in 2016 I'd never even heard of it. I asked the doctor to provide me with some information I could read and I was promptly provided with a print out from the internet about the condition. Paralysis, difficulty breathing, loss of bladder function, severe pain, possible death....it … Continue reading 10 things I wish I knew about life after Guillain-Barre Syndrome.
"......once the storm is over you won't remember how you made it through, how you managed to survive. You won't even be sure, in fact, whether the storm is really over. But one thing is certain. When you come out of the storm, you won't be the same person who walked in. That's what this … Continue reading You won’t be the same person who walked in.
It really is true when they say you don't know what you've got until it's gone. The everyday things that I used to take for granted, like waking up in the mornings feeling ready for the day, answering my phone when it rings, being able to decide what to have to eat, what to watch … Continue reading Before the rain.