Since being diagnosed with Guillain-Barre Syndrome my life has been challenging to say the least. Before my illness I was working full time and living alone. My house was mortgaged but I was managing pretty well financially. I had spare cash every month to spend on whatever I wanted and I enjoyed having my own … Continue reading Living alone with a chronic illness is really hard.
I thought this would be a good topic to write about because when I was first suffering with symptoms of Guillain-Barre Syndrome I did what most other desperate people in pain do, I googled it. Lots of conditions came up like sciatica, trapped nerve, anxiety, repetitive strain injury, but not Guillain-Barre Syndrome. The very first … Continue reading Guillain-Barre Syndrome – The warning signs.
When I was initially diagnosed with Guillain-Barre Syndrome I was in excruciating pain and being given doses of Morphine throughout the day and night in an attempt to make the pain bearable. I also couldn't walk on my own and had lost normal use of my arms and facial muscles. Although I was extremely happy … Continue reading My go to products for life after Guillain-Barre Syndrome.
Since my Guillain-Barre Syndrome diagnosis, one of the the things I've noticed is that people often don't consider me to be 'sick' or disabled if visually there is nothing wrong with me. Huge assumptions are made based on how I look. I don't have a wheelchair or walking aid so it's assumed I don't have … Continue reading Spoon Theory explained.
When I was diagnosed with Guillain-Barre Syndrome back in 2016 I'd never even heard of it. I asked the doctor to provide me with some information I could read and I was promptly provided with a print out from the internet about the condition. Paralysis, difficulty breathing, loss of bladder function, severe pain, possible death....it … Continue reading 10 things I wish I knew about life after Guillain-Barre Syndrome.
It really is true when they say you don't know what you've got until it's gone. The everyday things that I used to take for granted, like waking up in the mornings feeling ready for the day, answering my phone when it rings, being able to decide what to have to eat, what to watch … Continue reading Before the rain.